Isabel has one rule: no dating. It’s easier– It’s safer– It’s better– –for the other person. She’s got issues. She’s got secrets. She’s got rheumatoid arthritis. But then she meets another sick kid. He’s got a chronic illness Isabel’s never heard of, something she can’t even pronounce. He understands what it means to be sick. He understands her more than her healthy friends. He understands her more than her own father who’s a doctor. He’s gorgeous, fun, and foul-mouthed. And totally into her. Isabel has one rule: no dating. It’s complicated– It’s dangerous– It’s never felt better– –to consider breaking that rule for him.
October is a particularly important month for me because it’s Dysautonomia Awareness month. As I’ve said in my bio, I’m chronically ill with a list of sydromes, many of them under the umbrella diagnosis of Dysautonomia. To find out more about Dysautonomia and other chronic illness myths and thoughts, click the link below to my Advocacy page.
Now, lets get to the book-
Usually, for me, a life-changing book is a five-star read.
However, this is the first time I have read a book where main characters have chronic illness but DO NOT DIE!
Suffering from chronic illnesses is so lonely and isolating because if you don’t look sick, not many people care or care to understand. But this book is literally what my mind says every day! The representation of life with long-term chronic illness is spot-on for me and after some digging, found Hannah’s Instagram page and sees she also suffers with chronic illness.
Isabel was a character that I could understand fully with her life and struggles and the messages that this book gives the reader. It’s important to see that, for most of those suffering with chronic illnesses, suffer in silence because of fear that they will be ignored or told that their illness isn’t real (yes, that does actually happen). So creating an outlet for these discussions to be had is a great way to educate people that people can still suffer without a terminal diagnosis.
Similar to Isabel, she struggles every day to try and be like her friends and not let her diagnosis affect her life and keeps how she’s feeling from her father out of fear of being ignored.
Then she meets Sasha, a boy who also suffers from a rare disease who is trying to show her that her illness does not define her and that making adjustments so she doesn’t suffer more than necessary is OK too. And mobility aids!
I found that so much of the dialog between the main characters and their friends and family talk about topics and phrases that are harmful to those suffering with an illness and why it’s so hurtful to hear them. If there were more titles that spoke of chronic, invisible illness like this, we would live in a much more, respectful, unprejudiced world.
My only issue, I couldn’t get invested in the love story. I just couldn’t FEEL it, but it, to me, wasn’t the primary focus, more an added bonus.
If you or someone you know has long-term chronic illness, PLEASE READ THIS! It says what I wish I could say to people around me without coming across like a bitch…
Published – 5th November 2019
Publishing Company – Entangled Teen
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